


UPDATE: To see my results from the New York Road Runners' (NYRR) Holiday run in Brooklyn at Prospect Park, click here
"This is the hardest story that I've ever told. No hope or love or glory. Happy endings gone forevermore"



The Oakeshott conference was quite wonderful in so many ways and I hope to blog about it soon. But leaving the rather poignantly named Waco International Airport, I came upon one of those little moments of grace worth passing along. On my way to the gate, the shoe shine man did a boisterous sales job. "You've got plenty of time, sir. Plenty of time." I brushed him off, but he kept at it. I find the whole process of a shoe shine faintly embarrassing (although it has its moments in a leather bar) and the idea of sitting up on a pedestal while someone bows and scrapes on your shoes ... well, it just feels wrong to me. Before me in line, Roger Scruton had sat there and been ministered unto and I had inwardly smirked (to my shame).
But the man insisted - he was African-American - and at that point my libertarian instincts kicked in. This was his job and my own snooty sense of p.c. amour-propre shouldn't get in the way of his making a buck.
So I climbed up, sat down, and by way of easing my discomfort, asked him where he was from.
"Waco, all my life, sir." I then asked him what it was like when he was younger (he seemed in his sixties, I'd say). He told me of a tornado, and of floods. I then asked him about segregation. He didn't hesitate to talk about it, but I could tell he would have never brought it up if I had not prompted him. Yes, he recounted the indignities, as he dabbed my shoes with polish, but without a trace of bitterness: of how he and a co-worker would have to enter a store by different entrances, how any hint of rebellion would be met with violence, how you had to keep your head down or "you had a problem", how certain neighborhoods were simply off-limits by day or night, how his relatives had been beaten, how he had learned to keep his peace and do his job. At one point, it got so bad he left for Nevada. But he soon returned.
I asked him how he survived. "Prayer," he instantly replied. "I just prayed. We all prayed. We're Christians and we prayed. Couldn't have got through it without prayer. And prayer for them too."
He meant, prayer for those who tormented him.
We hear constantly about what Christianity is, but it seems to me that this was as clear a statement as it gets. And when I hear some dismiss religious life, and argue, as my friend Hitch does, that religion poisons everything, I wonder what they would say to this man.
On the plane to DC I took out my Merton (I'm re-reading The Seven Storey Mountain these days) and came across this passage:
It was St Augustine's argument, that envy and hatred try to pierce our neighbor with a sword, when the blade cannot reach him unless it first passes through our own body.
The shoe shine was a Christian. And he was happy.
I think I need to say nasty things to you for making me watch that video. Euw! I was expecting it to turn to porn any minute.So what's the lesson to be learned in all of this, boys and girls? Well, either don't say "nasty" things about a food stylist or if you do and that food stylist contacts you, proceed with caution lest the food stylist traps you like a big hot sticky mess of lasagna on a paper plate at Sbarro's.
I do not proclaim my faith with a boastful tongue or heavy pen. It has never been my intention, as the spiritual path before me begins to wend its way through expanses unknown, to presume a tone of judgment or to cast dispersion upon those of different faiths or no faith at all. In fact, in all that I write, my prayer is that it will be received in the spirit that it is written – that being an essay by me, for me that I share with you not to influence or decry, but instead simply to be, in the spirit of simply being.
The idea that I feel led to put a disclaimer on my writing when the topic happens to be faith is a bit unsettling to me, if only because it implies that perhaps what follows could possibly offend. Therefore if what I write offends you, then my faith offends you and it is not my intention to, in any way, offend. With that let me get to my purpose in writing today.
Often I feel as though we, as the human race, would do well to suffer from a severe bout of amnesia as far as Christianity is concerned. What I mean is that both those that profess a faith in Christ and those that do not would forcibly have all knowledge of Christianity blotted from their collective conscience and begin anew without the prejudices and preferences that each of us brings to the topic from years influence by both supporters and detractors alike.
If we were to have no working knowledge of Christianity and, more specifically, Jesus the Christ, we would, upon first encounter with his story, be stunned at how radically rebellious he was, how profound his words, how compassionate when faced with intolerance, how gracious in the face of hostility. Even if we were to simply assume Jesus to be a great teacher – as many do – if his story had never been told until this very day, how utterly amazing it would be to read "Go and sin no more", "lest ye who has not sinned", ""If you want to be perfect, go, sell your possessions and give to the poor…" , "Father, forgive them…", "For judgment I am come into this world, that they which see not might see; and that they which see might be made blind".
If we knew nothing of televangelists or the religious right or religious left, if we knew nothing of the Pope or denominations or leaders reviled and revered, what would our opinion be of the matter at hand? Who would Jesus be to us? What wisdom would we glean from his story and his life? What salvation would we find, what hope, what refuge, what nonsense?
If tonight, on the local news, they treated the story of Jesus as breaking news, what would our opinion be of him then?
I dare to say that some of his most ardent defenders today would be his most vocal detractors and some of his harshest critics would be at his side.
The entire landscape of faith would be altered and humanity would never be the same.
But that is precisely what did happen. Blotted from our collective conscience or not, some 2000 plus years ago the landscape of the entire world changed – radically and unequivocally – forever. And whether you believe him to be a great teacher or a crazed lunatic or a saviour, his life – in the finite span of three years – radically shook the foundations of earth.
And I have chosen, at the very age of his death, to live a life so radically bound to his call, so inextricably linked to his spirit, so inexplicably in love with his grace that I might very well lose myself in the journey.
In fact, I'm sure of it!
The Naked Baker, Jon-Marc McDonald, makes his most famous dessert to date, a Deep Dark Chocolate Cheesecake from the October / 2006 issue of Bon Appetit magazine. He also gets naked and highlighted in part 2 of the video.
Part 2 and the full recipe after the jumpDeep Dark Chocolate Cheesecake Bon Appétit | October 2006
by Jeanne Thiel Kelley
| In the '80s and early '90s, chocolate cheesecake was at the top of our list. The simple ingredients in this rich, dense version let a good boutique chocolate shine. Yield: Makes 12 servings Crust 24 chocolate wafer cookies (from one 9-ounce package) 1 tablespoon sugar 1/4 cup (1/2 stick) butter, melted Filling 1 9.7-ounce bar Scharffen Berger 70% Cocoa Bittersweet Chocolate,* chopped 4 (8-ounce) packages cream cheese, room temperature 1 1/4 cups plus 2 tablespoons sugar 1/4 cup unsweetened cocoa powder (preferably Scharffen Berger) 4 large eggs Topping 3/4 cup whipping cream 6 ounces Scharffen Berger 70% Cocoa Bittersweet Chocolate,* chopped 1 tablespoon sugar Bittersweet chocolate curls *Use Ghirardelli 60%. Trust me! For crust: Preheat oven to 350°F. Butter 9-inch-diameter springform pan with 3-inch-high sides. Blend cookies in processor until finely ground; blend in sugar. Add melted butter and process until well blended. Press crumbs evenly onto bottom (not sides) of prepared pan. Bake just until set, about 5 minutes. Cool while preparing filling. Maintain oven temperature. For filling: Stir chopped chocolate in metal bowl set over saucepan of simmering water until melted and smooth. Remove bowl from over water; cool chocolate until lukewarm but still pourable. Blend cream cheese, sugar, and cocoa powder in processor until smooth. Blend in eggs 1 at a time. Mix in lukewarm chocolate. Pour filling over crust; smooth top. Bake until center is just set and just appears dry, about 1 hour. Cool 5 minutes. Run knife around sides of cake to loosen. Chill overnight. For topping: Stir cream, 6 ounces chocolate, and sugar in heavy medium saucepan over low heat until smooth. Cool slightly. Pour over center of cheesecake, spreading to within 1/2 inch of edge and filling any cracks. Chill until topping is set, about 1 hour. Do ahead: Can be made 3 days ahead. Cover with foil and keep refrigerated. Release pan sides. Transfer cheesecake to platter. Top with chocolate curls. Let stand 2 hours at room temperature before serving. |


So yesterday, the husband and I made a trip to the Upper East Side. As we were heading up the West Side Highway( pictured) I made sure he was certain that what we were going to get was there. I told him that I did not want to take the car out, drive from the lower west to the upper east of Manhattan unless he was certain it was there. And by it, I meant that it needed to be in perfect condition and all my requirements had to be met. He assured me everything was according to my specifications.
As we crossed from the west side to the east side via Central Park I realized that it was the first time Belle, our car, had been driven through the park. I had to take a picture.
As we were approaching 5th Ave, where the east side of Central Park begins (also known as Central Park East) I began getting nervous. After all, Ric has said and done so many thing over the past year, we might arrive at where we were going and I might realize it was all a figment of his imagination.
As we were driving down 2nd Ave (I believe) there was a very attractive man talking at the corner. I figured he was worth the picture since I wont see my soho boys for a couple of weeks.
And when we arrived, there she was, just as Ric said she would be. At the 92nd Street ASPCA, which by all standards has got to be the nicest, cleanest, most efficient ASPCA in all the land, our little girl was ready to go.
Weezie on her first car ride home, curious she! At one point she rolled down the window. Thank God for child safety window locks on the car
Weezie was perfect but she stunk so the first thing we did (I did) when we arrived at the loft was give her a good scrubbing. She was having none of it.
It was like that part of the rodeo where they send all the kids out to chase the pigs and the pigs slip through the kids' hands. She HATED it!
After Weezie dried off and I took a bath I familiarized her with her new home.
Me posing with Weezie just after I woke up from a nap (Pardon the hair. Mine, not hers)
Weezie with her new favorite toy on her new favorite bed, which happens to be ours. She slept with us last night. It was nice. It was just as it should be. We waited, Ric, my amazing healing husband picked her out, he did all the ground work in securing her adoption and prayers were answered.As you may have noticed, my series Angels I Don't See, has not been updated in nearly a month. Though many "part"s of the story are written I have not posted them for various reasons. Interestingly enough, I have noticed a steep decline in my readership over that period of time as well. I suppose an explanation is in order. Many of you who have followed my blog(s) over the years know that I abruptly stop writing or posting without any explanation whatsoever. Many times in the past, it was due to a relapse or because of some other dramatic event. Thankfully this time my lack of attention to this blog has nothing to do with those things.
Over recent weeks I have been experiencing fatigue, the likes of which I have never experienced before. Doctors and therapists and other professionals who have seen me all have a name for it: Caregiver Burnout. In fact, one therapist, when going over a list of signs and symptoms of caregiver burnout, noted that all but three applied to me. The list, though not exhaustive, is as follows:
Since that time, all but four apply to me. I quit smoking a few weeks ago (not for health reasons, mind you, but because it was just so damned expensive. And yes, quitting has been hard). Since I do not work (though being Ric's caregiver is a full time job) and do not drink that knocks four of the 17 off the list. And the idea of finding a job is overwhelming (see sign #2). But 13 out of 17 is not good. And, for me, at the top of that list is "feeling constantly exhausted".
So, dear readers, this is not just a post about my woes and how tired I am. It is a request. Over the Labor Day weekend, two of Ric's relatives will be visiting from Saturday, September 5th- Monday September 7th. And I need to get out of town (or at least out of the loft), not because his relatives are coming but because I need two days of peace and quiet and they will be able to watch him during that time.
If anyone in the tri-state area or beyond would be willing to have me as a houseguest for two days, please let me know. Originally I was going to just drive somewhere upstate or possibly New Hope (I heart New Hope), Philadelphia or Pitt and get a cheap hotel room and do nothing but perhaps read and walk and be still. However, after much prayer and counsel (thanks, MF) and the fact that I don't even have enough money for a cheap hotel room, I decided to reach out to you, dear readers. Also, me alone in a hotel room has never ended positively.
Or, if you live somewhere far away and want to fly me, that works as well (I'm kidding. Ok, not really. I will take all offers. I am not below begging ).
I do have some requirements. What's that you say? Why would I have requirements after having the audacity to ask to crash somewhere for two days? Well, here's the deal.
I need PEACE and QUIET. I need a place that I feel comfortable enough to come and go as I please and can sleep (or not) for two days. If that place is in Manhattan, fine. If it's in New Paltz, that's fine as well. But it needs to be peaceful and somewhere I can decompress without worry that I am imposing or getting in the way. Also I am 6 feet 6 inches tall. So unless you have a long couch or an extra bed I would probably not be a good fit.
Another thing, I don't camp. What I mean by that is I would rather be waterboarded than camp. It's just not my thing. I admire those that can (LL and MM) but just like throwing a football (or for that matter, watching a football game), it is not something I can do. My idea of camping includes a concierge and room service (I may be on food stamps, but a boy can still dream).
It also needs to be a place where there is no alcohol.
I know, it's asking a lot. But I need to get away. And bonus for you. You will get to be with, and I quote, "the very famous Jon-Marc McDonald". What more could you ask for?
The next morning, before Ric woke up, I left my letter and walked out the door.
Babe,
If you are reading this it means I have moved out. Leaving was the hardest decision I have made in my entire life. I hope you know I will always love you and that my heart aches that our life together had to end this way.
Watching you choose to die has nearly killed me. I was so hopeful that during your stay at the hospital they would find out what was wrong with you and could correct it. But you chose to leave, against medical advice and doctor’s orders, and they were not able to give all the tests that you needed.
Also, learning in the hospital that you had HIV and that you knowingly withheld that information from me for months devastated me. And that you walked away from the hospital when you were getting help made me realize that you, in fact, want to die. Since you have chosen to die, I have chosen to leave in order to live.
And to make matters worse, your confession on your hospital bed that you did leave the scene of an accident while driving my car even though you do not have a license cut me to my core. That you would watch me anguish, for nearly two weeks, over a court summons and vehemently deny any involvement was the final straw. I realized, after your confession in front of Michael, Jen and Dr. [Stop], that you no longer care for me at all.
I want you to know that if you get help and start on meds and I am able to verify with your doctors that you are trying to get well, I might change my mind. And by help I mean that you must return to the hospital (I suggest New York Presbyterian) until they figure out what is wrong with you. But as of now, you are on your own. And you are currently on a path to die penniless and alone.
Also you will need to figure out a way to get all the bills AND rent paid as well as return to work or find a new job in order for me to return. We are financially ruined due to your denial. And I won’t be here to watch your life deteriorate.
Things you should know:
• I have taken things that I need in order to live. I have taken all my clothes, as well as some things that we own together. Someone will be back to pick up the rest of my stuff soon, including half of the furniture.
• I will begin the process to dissolve our civil union within the next two weeks. Since you are dying I am not sure you will be there when the court divorces us.
• Your bank account has ten dollars in it. When that is gone, you will not have any more money to live off of.
• The electricity and cable are about to be cut off, as well as your cell phone.
• The rent is due on the first and they will begin eviction proceedings on you by January 7th. When they evict you, they will seize all your stuff in the apartment.
• Trotter must be walked and fed. Do not let her die because you can’t get your life together.
• I suggest you urgently talk to Audrey so that she can send you some money. Otherwise you will not be able to survive. You should ask for 2500-3000. Anything less and you will not be able to pay the bills and the rent.
• Starting tomorrow I will be blocking my mother’s number from your phone once again.
• I have a new phone and phone number. You will not have access to it and my old phone number on our family plan will no longer work beginning January 1st. Therefore you will not have a way to get in contact with me.
• There is plenty of food here to live off of for a couple of weeks. After that, it’s gone.
I hope you get the help you need. All these things that you are suffering from are reversible. But soon they will not be. Soon it will be too late and you will die in a hospital room all alone. I sincerely pray that you face reality soon before such a thing takes place. As I wrote before, if you go get help at the hospital and do all that the doctors tell you, I will return. In addition, all bills must be fully paid as well as the rent. But until I can verify that you are going to the doctor, taking meds and the bills are paid, I will not be back. And since you have lied about so much over the past few months, I am sure you won’t do anything.
I wish you all the best and will miss you terribly. I cannot tell you how difficult it is to leave. I want nothing more than to walk through this with you. But the fact of the matter is you gave up on life long ago. And I will not join you on your death march.
I love you more than you could ever know. Always have, always will.
Love,
Jon-Marc
Ps. Don’t forget to walk Trotter and feed her. Walk her the right way, outside the gate, on her leash. Do not neglect her. She means so much to me and she should not suffer due to your negligence.
Are you f’in kidding me??? You don’t know why the guy you are treating is here? Do they even screen the doctors at [sometimes I have nightmares about being tied down with barbed-wire to a gurney in this place as they are wheeling me into surgery] or do they just have them watch a couple of episodes of Grey’s and give ‘em a stethoscope and some scrubs and then throw them on the floor of the ER for some hands-on training? I thought, for fear that if I said it out loud they might declare me dead right on the spot and start lifting my organs from my still-warm-to-the-touch body.
No, I am not. But I do know what push-me-too-far-you-mother-fucking-piece-of-doctor-caca-and-I-will-go-psycho-on-your-ass-and-if-you-don’t-start-listening-to-me-I-am-going to-take-that-Blackberry-and-make-it-a-permanent-part-of-your-face is.
Part XVII
When I arrived at UMC Ric was being monitored by a nurse that would sit in his room day and night. If Ric so much as attempted to get up the nurse would calmly but firmly dissuade him. If Ric persisted, the nurse would stand up and escort Ric back to bed.
It was comforting to know that he was in UMC. At the time, the beginning of January, I did not know anything about the disease that was consuming his life and, by extension, mine as well. Though I had friends with HIV in the past, I never knew anyone that not only ignored their diagnosis but chose to believe that the doctor bearing the diagnosis was an outright, maniacal liar.
"His viral load is 775,000. That is extremely high. But there is no need to be frightened. I have seen the number drop significantly within a few months. However, he must stay on the medication and try not to let him forget to take them as prescribed" Dr. M told me just outside his room.
"What do we do?" I responded not quite clear what viral loads were or what a high viral load meant.
"We make sure he is eating and taking his medicine. Those two things are key. First, get his weight up and get his viral load down and then we get his CD4 count up"
"CD4 count? What does that mean?"
"Basically, anything below 200 and the patient is classified as having AIDS"
"Oh. So does he have AIDS?" I responded without even asking what the actual CD4 count was.
"Yes, by definition, he would be classified as having developed AIDS. But there is a lot that can be done. There is no need to lose hope"
Dr. M continued to talk but I was not listening. Instead my mind was reeling as to how this disease progressed so quickly. If he did in fact find out his status in August, how had it seized his body so quickly? He had HIV tests just months before and they were all negative. Or were they?
Everything that I thought I knew, everything that I believed to be true was thrown into question. Did he cheat? Had he known about his disease for sometime before the August test? Months? Years? There was no way of knowing. As every day brought about more information and more disclosures, Ric's "truth" was as malleable as silly-putty. Up was down, left was right, day was night, my lover was a stranger.
"Now, when does his insurance run out?" Dr M asked.
Prior to arriving at UMC I called Dr. M's office and happened to tell his receptionist that Ric's benefits were set to terminate within days.
"Sunday or Monday I believe. I am trying to figure out how to get him on SSDI and Medicaid. Do you accept Medicaid?" I responded, not sure how I was going to fast-track the SSI, SSDI and, most importantly, Medicaid so there would not be a gap in his coverage.
"No, but don't worry. There are plenty of capable doctors that will. Have you looked into the Health Clinic?" Dr. M asked genuinely.
I knew Dr. M would not accept Medicaid. Though I was upset by that fact, I took comfort that Dr. M would find us a capable physician that could effectively treat Ric's disease.
"I have an appointment with them today. In fact I have so many appointments I am not sure how I am going to keep them all"
Little did I know in early January that my life would be nothing but appointments from that point on. Appointments and paperwork. Every charity and every government agency required separate and equally exhausting reams of paperwork that meant face to face meetings, notarized documents, bank statements and a bevy of intimate and personal questions – questions that one would not even ask their closest friend.
After speaking with Dr. M I went to Ric's bed and stroked his hair. He was sleeping and, as Annie sings, his "face at first just ghostly, turned a whiter shade of pale", and I began to pray.
"I can't do this alone, God. I don't think I can do this, period. If he goes, just take me with him. I have never known a love like this. Please give him a few more months, even a few more years. Bring back my love…my life…and I will do anything"
I have never been the type of person that negotiates with God. In fact I don't believe that God is in the business of negotiations. But I was willing to try anything. If someone told me to go to the Amazon Rain Forrest and pick fresh CamuCamu to be rubbed on Ric's belly while standing on my head at a 45 degree angle, I wouldn't have blinked and immediately booked my trip to the jungle.
Just as my prayer was closing, Ric opened his eyes.
"Where am I?" he asked, his speech slurred.
"You're at UMC. We had you transferred here so Dr. M could be your attending physician. How are you feeling?"
"I told you we have a home on the island. We don't need to stay at this hotel. I don't like this hotel. It smells like a hospital. Is this my iPod?". Ric was pulling at the tube connected to the IV that pierced his left hand.
"No, babe. That's your IV. Be careful. Don't pull it out. If you pull it out they will put it back in and that's no fun"
"Don't lie to me, Jon-Marc. They don't put IVs in at a hotel. This is an iPod and it doesn't work. You need to quit lying. God hates liars. Do you want God to hate you?"
With that, Ric yanked his iPod out of his arm and blood began to soak his sheets.
Two weeks, two IVs pulled prematurely, countless accusations that I was a liar and still believing fantasy.
Little did I know that I would long for the days when Ric pulled iPods out of his arm and screamed "Liar, liar, pants on fire". Things were about to get really messy, really quick.
PART XVIII
"Oh, I see! You're now calling me after three years of not talking to me because you need help. You know, all my friends have told me to cut you off completely, to never talk to you again. They're probably right. Why should I listen to what you have to say after everything you have done?"
My Dad was right. A few months after my father and his partner loaned us money for a car so Ric could get to work in Bridgewater, New Jersey, I quit talking to him. I was ashamed that I could not pay Dad back like Ric and I agreed we would and decided that, rather than tell my father about our struggles, it would be far easier to cut off communication. Quite frankly, shutting people out of my life for no apparent reason was a pattern. And my Dad's reaction to hearing from me after a three year absence had a familiar ring to it.
Though Ric could not possibly understand what I was saying at the time, I had been telling him the exact thing my Dad told me. I explained to Ric how most of my friends were encouraging me to leave him, to never talk to him again, to let his blood relatives and the state sort out the mess he had made of his life. I made clear that his actions were cruel and to some degree evil and that the idea of walking away and never looking back had crossed my mind more than once. I knew that Ric was unable to process what I was telling him but I needed to say it. I needed him to hear it even if he could not comprehend what it was he was hearing.
"Dad, I am really sorry. The situation is so desperate and so bad right now and I am turning to every possible resource I can. I am watching the love of my life waste away from the plague in the supposed non-plague years. I know how it looks calling you after so many years. And you are probably right. I probably would not have attempted to get in touch if the situation was not so dire. I just need some help". As I was talking to my Dad I was looking out the window of Ric's hospital room at the view of the Empire State Building, an ironic view, to be sure, since the last time Ric was in the hospital he had a view off the Statue of Liberty. Once again, the iconic view did not provide the inspiration it once had.
"What about his sister? Have you called her? Is she helping any? I can tell you right now that Jack (my Dad's partner, not his real name) will not be willing to send any money. He is livid at you about the car" my father replied angrily.
"Don't get me started on her. His sister Eunice (not her real name) has been no help whatsoever. Before we knew what was wrong with Ric I was on the phone with her all the time, trying to see if she could convince him to go to the hospital. Her solution was to get one of my friends to come over and forcefully carry him to the car and forcefully force him to the hospital! As if my friends and I could essentially carry a 51 year old man kicking and screaming to the car and then subdue him until we got to the hospital! But that was her solution! And when I did get him to agree to go to the hospital, he jumped out of the car while it was moving as we were heading there." My Dad hit on an exposed nerve when he brought up Ric's sister. Little did I know that in the coming months, Eunice's kidnapping suggestion would be the extent of all the help she would offer.
"What does she have to say now? Does she know he has HIV? When is she going to be up there to see him and help with him?" This was classic Dad. When there was a problem, he wanted to know who was going to step up to the plate and help and who was going to pass the problem off to other people.
"I don't think she is coming up to help. She had knee surgery a few months ago and…actually, can we quit talking about her? She is going to be of no help so I really want to be solution focused. She is not part of that solution. In fact, in many ways she is part of the problem. I don't want to get into it now"
"Knee surgery? Knee surgery a few months ago is preventing her from getting there to visit her only brother who is dying? Give me a break!" my father said as his anger shifted from me to her.
"Yeah, but anyway, our insurance runs out on Sunday and I know they are going to release him before it runs out. I met with a guy who is now Ric's case manager and he made an appointment for Ric to see the doctor at the Health Clinic on the 28th. His case manager is also helping me apply for all the assistance we can get. I also met with the guy that is the head of one of the HIV resource centers here last week with Ric before he went to the hospital. He was so comforting and encouraging. He told us not to despair, that there is a lot of help out there and it's just a matter of finding it. The one thing he did say, though, was that due to the increased survival rate…no, sorry…the longer people are living with HIV has caused the funding for programs such as his to be slashed. But still, he was very helpful" In the short time since I found out Ric's status I was on the phone nonstop with charities and HIV organizations, scheduling meetings and trying to navigate the elaborate labyrinth of securing assistance.
"Ok, the 28th. I will drive up on the 27th and help you take him to the doctor. I will also bring things that you two need, like food, Depends, cleaning supplies, and whatever else you can think of. What else is happening? Is there anything else that we need to address quickly?"
"Well, yeah there is. Ric drove the car a few weeks ago without my knowledge. He does not have a license and apparently he hit a car and left the scene. Anyway, I got a court summons and now I am the one, since the car is in my name, that is going to face the charges" I said as I held my breath and waited for what I knew was not going to be a pleasant response.
"WHAT!?!?!?!" my father replied, his anger rising to white hot flame territory. "You mean to tell me that he drove the car we got him so he could get to work and he has never had a license?"
"No Dad, when we got the car he had a license. But since that time his license expired and since he no longer needed the car to get to work because his job was transferred back into New York, he did not get it renewed. I am the only one that has been driving the car…in theory"
"So he drove the car and now you are going to court? Good luck in jail!" My father has always had a flair for the dramatic, turning a bunny slope into Mount Kilimanjaro ready to erupt.
"Yes he drove the car and yes I am going to court. But I got the police report and there was no damage to the other car. I am not going to jail. I just have to go to court. Please don't make this bigger than it is. In fact, let's not make any of this bigger than it is" I said futilely trying to calm my father's rhetoric.
"Get your head out of the sand, Jon-Marc! I am not making this bigger than it is! Ric has HIV, possibly AIDS that he hid from you and everyone else for many months, possibly longer. He drives your car, gets in a wreck and, once again, does not tell you. Now you're going to court. You are carrying the weight of all his lies and cleaning up all his messes. Haven't you thought about leaving him? I don't need to make this bigger than it is. THIS IS FUCKING BIG!"
"First of all, it's AIDS. Secondly I can't leave him. I've made that decision. You might not agree with it and, to tell you the truth, most people in my life don't. But if I don't stay he's a dead man. And I couldn't live with myself if I left him to die. He does not have the mental capacity to take care of himself. I am really sick of people who essentially don't have a dog in this fight telling me what I need to do. His niece told me I needed to secure our belongings in the apartment because we were going to be evicted. Then she told me to find a job because if not, we were going to be homeless. When does she think I have any time to find a job and pack our stuff and take care of Ric all at the same time? Everyone has a fucking solution to this problem. And you know what? Every solution every person offers does not include that person!"
It took every ounce of humility I had left to call my father and ask for his help. Though I was clearly wrong for not paying back the money we owed him and his partner for the car, I still carried a huge resentment against my father – a resentment that, no matter how hard I tried, I could not shake. And the years that we did not talk only caused the resentment to metastasize and fester and, in many ways, become infected.
My father and his partner have been very generous to me through the years. But, despite that generosity, my father's generosity towards my younger brother has been unparalleled. He pays for most of his education at NYU, has taken him on lavish trips around the world, given my brother thousands of dollars in gifts, bought my brother a brand new car when he turned 16 (without condition that my brother pay him back) and, apparently, paints me in the worst possible light in discussions with brother. My father, of course, would justify all of this by saying that I continually screw up and he has given me plenty of chances.
The problem is that, while I worked from the time I was 14 and throughout college, my brother has never been required to work. And while my parents were separated and during their ugly divorce as they fought for custody rights and visitation rights concerning my brother, I was in college not knowing what the hell was going on, not knowing who was telling me the truth and also dealing with the painful, lonely, reality that I was gay. It was for these reasons and many more that made my groveling at my father's feet a bitter pill to swallow. I was a bitter man swallowing a bitter pill. However, having been broken to the point of complete defeat I was not in the position to decide which pills I was willing to swallow and which pills I would spit out. Every pill would be taken with a big glass of unsweetened iced-humility.
I had no other choice. My medicine chest was bare
PART XIX
As goes the insurance so goes the patient. I was not surprised nor was I upset. Ric's doctor did all he could do for him in the hospital and seemed hopeful about Ric returning home. I was also comfortable with Ric returning home due to him being approved for an AIDS drug program that would provide his medication at no cost to us.
Everything changed the moment we arrived at the loft. Prior to Ric's hospital stay his problems were primarily related to delusions of the mind and a childlike mental capacity. Upon his return, his entire body seemed to give up.
He lost all control of his faculties, could not speak coherently, was unable to feed himself, could not walk and slept at all hours. I could not leave him alone for even a minute. I was tethered to him, meaning I could not leave the loft unless someone was watching him for me. I fed him, cleaned him and carried him to the bathroom. In sickness and in health was no longer a sweet sentiment expressed when we exchanged our vows. It was pure sickness all the time without the promise that health would ever return.
Sure enough, the dreaded court date arrived and I was forced to leave Ric is someone's care beside my own. My brother, a sophomore at NYU, came over and watched Ric for a few hours. Though, as I wrote previously, I resent my father's favoritism of my brother, I have never resented my brother. After all, it was (or is) not his fault. I have never felt anything but love for my brother and am the proudest big brother in the world for all he is accomplishing.
"He has Depends on, he has eaten and the only thing you need to worry about is if he tries to get up, which he will. If you don't stop him he will fall. So make sure when he starts to move you stop him. If he were to cut himself or something use these gloves and clean the wound, put some ointment on it and a band-aid. Make sure you wear the gloves" I said as I handed my brother rubbing alcohol and a box of gloves and Band-Aids. I felt as a parent does the first time they leave their child in someone else's care.
I was nervous about my court appearance. There were two things I was determined not to do.; I would not enter a guilty plea and I would not mention Ric. The former was non-negotiable; the latter was contingent on the judge not asking if anyone else had access to the car. Of course, given my unfounded fear of law enforcement, it was likely I would blab like Khalid Sheikh Mohammed being water boarded if the judge so much as sneezed at me.
I sat in the packed court room, hoping beyond hope that I was outwardly masking my fear. I was dressed in a suit. Everyone else, except the prosecutor, was in jeans.
Great Jon-Marc. You look like an ass in your suit. Why didn't you just bake the judge some cookies and offer to wash their car? After all, it's obvious why you're wearing a suit. You want the judge to think that someone dressed as nice as you could not possibly be guilty of leaving the scene of an accident the voice in my head said.
GUILTY! the other voice replied.
"John McDougal. Is Jon McDougal here?" the prosecutor asked. I looked around the room to see if John McDougal came forward.
When no one responded I screeched "I'm Jon McDonald. Actually I'm Jon-Marc McDonald. Did you mean Jon-Marc McDonald because I am Jon-Marc McDonald? I'm here for a hit and run charge for which I am pleading not guilty because, uh, that's what I am, not guilty. Is that who you meant? Jon-Marc McDonald?" There was no other way to describe my outburst except that it was pure diarrhea of the mouth. So much for calm, cool and collected.
"No, I meant John McDougal" the prosecutor replied.
"Oh, well doesn't McDonald come before McDougal alphabetically?"
Shut. The. Hell. UP! Jon-Marc!
"It does if I was calling names alphabetically" the prosecutor said, his eyes fixed on me like a scope fixed on its target.
What was I doing? I listened as the prosecutor called people up to his table and knew that he was not calling people alphabetically. If my nerves got any worse, Ric was not going to be the only one with incontinence.
After a few more names the prosecutor came to my name.
"Jon. Mc. Don. Ald" He made a point to pause between every syllable which in turn caused the entire courtroom erupt in laughter. He continued. "No need to come up. We all know your plea.
"Ok, thanks" I said, wanting more than anything to run out of the courthouse into oncoming traffic. At once the anger and hurt and despair begin to bubble up. It felt as though everything I was going through could all be blamed on Ric. The court, dealing with his disease, finances – everything. I did not know how much more I could take.
"All rise. The honorable blah blah blah, blah blah" the bailiff or whatever you call the person who introduces the judge said.
"You may be seated" the stunningly beautiful and quite young judge, said.
"I want you all to know that if you are not guilty, do not plead guilty just to get your case over with. Pleading guilty when you are in fact innocent is not the solution" she continued.
Wow, I thought. This judge is cool. I am not guilty and I am pleading not guilty. She's gonna see all my evidence and she's gonna dismiss on the spot
After a few cases went before her and I realized that she was pretty damn awesome, she called my name.
"Mr. McDonald. It is my understanding that you wish to enter a not-guilty plea. Is this correct?"
"Yes, your honor. I wish to plead not guilty. I move to have this case dismissed" What the hell???? I was acting though I was Perry effen Mason!
"Unfortunately Mr. McDonald, you cannot move to dismiss the case at this time. I assume you are going to represent yourself. Is that correct?"
"Yes ma'am, um, I mean yes your honor"
"Ok, your trial date is set for two weeks from today"
"My trial? But I just pleaded not guilty. Isn't this the trial? I can prove I'm innocent. I have all the evidence right here" I said as I held up a folder full of documents.
"No, Mr. McDonald, we need to contact the other party involved in the alleged accident as well as the officer who took the report and notify them so they can come and testify if they so choose" the judge replied.
"You mean they weren't contacted already? That's silly. What a waste of taxpayer money. This could all be streamlined in my opinion, for the sake of the taxpayers." Perry Masson morphed into Ralph Nader with a touch of Grover Norquist thrown in for good measure.
"Is that all Mr. McDonald" the judge calmly asked.
"Yes, see you on the 27th." The 27th was the day my Dad was to drive up from Washington, DC and help take Ric to his appointment at the Health Clinic, ensuring that the 27th would be the day I faced two judges. Ironically, both would end up judging me on things I had not done.
PART XX
The following takes place at the end of January, 2009
Since, at this point in the story of Angels, my father emerges, I should take some time and explain my family. My brother and I have often discussed turning our family life into a play. My brother is a theatre major at NYU and given the material with which we have to work is plentiful and replete with dysfunctional tales of family drama, I am certain we would have a hit on our hands. And the play would not be exclusively focused on my mother and father. It would include a cast of characters that include my extended family, most of whom make Mama’s Family look like the Brady Bunch (and I mean that in a good way…I think?).
My relationship with my father has been, to say the least, a strained relationship for many years. People often assume that since my father is also gay we have this fabulous, Rainbow-Brite, boa tight bond. Actually quite the opposite is true. In fact when I told my father I was gay, three months after he told me he was gay, his first response was “But I wanted grandchildren. Now I’ll have to wait years for Grant to grow up and have kids”
It was, to say the least, not exactly the confetti and ticker-tape, welcome-to-homo-land reaction I was expecting. Similarly, my mother, years after finding out I was gay, during a conversation (actually it was a yelling match, of which we’ve had many. My family loves to yell, myself included) said, after I asked her about my right to marry the man I loved, “What about my right to grandchildren!?!??!”, a non sequitur to be sure, but when my family argues, logic rarely makes an appearance. We tend to go for the jugular (or in this case, the non-existent grandkids). We are ruthless and logic is the farthest thing from our mind.
My parents really want grandkids. And God help my little brother if he doesn’t produce. My mom and dad just might literally melt or go steal babies from maternity wards. God help my brother and all the maternity wards in my parents’ respective cities if he tells my parents that he does not want children, I hope he does it over the phone, thousands of miles away from where either of them could get to him.
A few years ago, while my brother was still in high-school, my father, his partner and my brother paid Ric and me a visit. It was not the first time they had visited us so I was perplexed as to why my father suggested after lunch on the Upper East Side that we go to F-A-O Shwarz. What in God’s good name would he possibly want to do there, I thought?
After strolling around the store with my father et al. in tow Ric and I decided to look around the store ourselves, alone. Though I have never been a big fan of F-A-O or anything in New York that attracts hordes of tourists like mosquitoes to a blood-bank, I have always been fascinated with their Barbie section (whatever! Stereotype my ass if you’d like!), and F-A-O has this fantastic collection of Barbie dolls.
After getting my fill of all things Barbie we went looking for my father, his partner and my brother. As we were descending the escalator I noticed that they were all staring at a huge display full of plush stuffed animals.
“What are you all doing?” I asked
“Oh, nothing”, my father replied, “just looking at all the stuffed animals I want to buy for my grandchild”
“You do realize that you don’t have a grandchild, right dad?” I responded, a bit flummoxed at his answer.
“I know I don’t have a grandchild!” he yelled in disdain, “But Grant will have children one day and I was just thinking about when I will have the chance to buy the baby all the stuffed animals and toys and things”
Daydreaming about what amounted to a fictional character in his life? If my coming-out response was not enough, this episode of delusion cleared up any notion in my mind that my father had moved past the grandchild kick. He was, without question, obsessed. And my brother was the vessel by which my father’s dreams would come true.
I tell that story to give you an idea of my father. As I have written in previous parts of this story, I have done quite a bit to earn my father’s rebuke. But one thing to keep in mind, due to all that have done, is that he has pinned all his hopes and dreams of grandchildren, among other things, on my brother. I don’t envy my brother’s position at all (well, except for the new car, the paying of his college tuition, the first class trips to European countries, and *fill in a plethora of resentments here*)
Anyway, as so many can relate, my father always expected more out of me. I never went to the right college, “worshipped” the ground my late maternal grandfather walked on (whom my father hates to this day and cannot have a conversation, any conversation, without bringing my grandfather up), never followed through on anything for more than a few weeks. And finally, my father does not believe in alcoholism and feels as though, when I bring it up, I am using it as an excuse for my behavior. Needless to say, our relationship has been tumultuous. Much of my father’s criticisms of me are valid and, of course, much of them are not. Two queers, father and son = High Drama.
This is not to say that my dad is a bad man. Far from it. I have never doubted his love for me and he always provided the necessities of life growing up, and then some. I was not abused, or neglected or even shamed as a child. But as I became an adult, just as my parent’s divorce was underway, my dad expected far more from me than I was able at the time to give. Their divorce became a battle royal for custody rights for my brother and, being away at college, I never really knew what was going on. What I did know was that it was a brutal, devastating divorce that was as nasty and heartbreaking as anything I have known.
But my mom and dad do share something in common. Heaven help anyone they perceive to have slighted either of their two children. My mother will rise up like an erupting volcano if she perceives her children being treated negatively. She is not a protective mother – she is THE protective mother who will fight like mad to protect us, even to this day. Similarly, my father will do anything to make sure that anyone who hurts my brother or me is met with an iron fist. His protectionism is more like a tornado set to destroy anything in its path. It is comforting to know this. In fact, my parents have been excellent parents and my love for them knows no bounds.
So anyway, as I was preparing for my father’s arrival, I was preparing for the worst (as is my standard operating procedure when waiting for an event to occur, any event). There were at least four things that I knew my father was not happy about:
1) That I called him only when I was in dire need of help after not speaking to him for nearly three years
2) That Ric kept his status from me for many months
3) That I was going to court to cover Ric’s ass after all that Ric had done to me and my father was livid about that as well considering that my father and his partner are the ones that bought the car involved in the alleged accident.
4) That Ric’s family had done nothing to help.
All four were fair game and he had every right to be upset. The problem is, especially when it comes to my father, whether or not I am right, I can never stand up to him and tell him what I think. I tend to keep my mouth shut until I am at the tipping point and relapse and then I call him and lose. It’s not just drunk dialing, it’s drunk dialing derangement syndrome. My mom and my dad are usually the targets but occasionally I will unleash my venom on others as well.
I was also preparing so many other things. The paperwork to get Ric on all the different programs he needed to be on in order to survive was endless. As I have written previously, many agencies ask for financial records that are impossible to produce and many others ask such intimate questions that you nearly want to just throw the applications away. I mean it was almost to the point of “Please, in inches, tell us your penis size, flaccid and erect. Girth and length must be included. If you choose not to answer, or answer incorrectly, it could delay the application process for up to ten years”. Some of it was just that bat-shit crazy!
Needless to say, the day my father arrived, I was a big hot mess of over-the-borderline get-me-in-a-cell-with-a-padded-room, stat!